From SLSC Board Member Shannon:
Lindsay is one of my closest friends. She always has an upbeat attitude and a smile on her face. She loves Wicked and all dogs, and she's the Queen of Snapchat.
What you may not realize about Lindsay from looking at her or talking with her is that she is dealing with several chronic illnesses including Ehler's Danlos Syndrome (hypermobility type), postural orthostatic trachycardia syndrome (POTS), chronic Lyme disease, dysautonomia, and thoracic outlet syndrome. Most recently, she has had to deal with median arcuate ligament syndrome (MALS) as a complication of some of her conditions.
Unfortunately, all of these conditions have caused Lindsay to take a hiatus from school and work to focus on getting better. While she has health insurance, many specialists and drugs she needs to treat her condtions are not fully covered, causing her to be up to her eyeballs in medical bills at only 23.
I'm establishing this GoFundMe in hopes of helping her get some of these bills down to help alleviate some of the stress on her, so she can focus on letting her body rest and heal. Lindsay is one of the most positive people I know, regardless of her condtions, and she deserves to not have to worry about the cost of getting better. I know that $10,000 is a lot, but it will do a lot in helping her pay off her medical bills.
Thank you to everybody who has donated so far!
Lindsay is now needing a repeat surgery for Median Arcuate Ligament Syndrome (MALS). This condition is caused by a deformity in the median arcuate ligament, causing it to wrap around the abdominal aorta and compress the celiac artery. The celiac artery provides blood flow to the stomach, liver, spleen, and part of the esophagus. The surrounding nerve complex, called the celiac ganglion, is inflamed and rubbed raw. This causes severe pain, nausea, and vomiting especially when eating or drinking. She has extreme difficulty eating and drinking and needs a PICC line in order to get daily IV fluids. The first surgery, done laparoscopically in August, provided relief for about a week before it failed. In fact, the artery is compressed even more and her symptoms even worse than before. The second surgery will be on November 3rd and will be done as an open surgery with a 6-7" long incision. Lindsay will be in the hospital for about 4-5 days and then a week recovery in a hotel near the hospital afterwards. Due to all the traveling to Cleveland, Washington DC, and Baltimore that was required in order to diagnose MALS and for the first surgery, finances are running low and money is needed in order for her and her parents to fly to Virginia and back for the much needed open surgery. Plane tickets alone are approximately $1000 total, then there is also the cost of the hotel, food, and all the hospital and medical bills. Anything helps, even just a couple of dollars!
Lyme Disease is a misunderstood and dismissed disease by our medical community, as well as our government. Due to complications from Median Arcuate Ligament Syndrome last July-December, Lindsay's Lyme disease went untreated and progressed to the point where IV antibiotics are necessary.
Unfortunately, the cost is significantly more. The Lyme has progressed so far that it is affecting the nervous system. Her nerve endings are so damaged and the slightest pressure causes pain. Another consequence of the Lyme infiltrating her nervous system is brain damage which is reversible with IV antibiotics. She went from an aspiring doctor majoring in behavioral neuroscience to being unable to even read a book. She is having problems with memory loss, concentration, difficulty expressing and understanding language, debilitating fatigue, depression and anxiety, as well as heart problems - specifically tachycardia - caused by POTS and joint pain caused by Ehlers Danlos. She is also having regular fevers, vision problems, peripheral neuropathy, and nausea.
Lindsay resumed appointments with the Lyme doctor in January, but was still too sick from recovering from MALS surgery to begin treatment, then treatment got pushed back again when her cervical spinal column started collapsing (due to Ehlers Danlos) and causing severe problems, leading to another spinal fusion in April, resulting now in a completely fused cervical spine. The treatment would last 7-8 months, and if started soon, she could be back in school in January.
Lindsay has been too sick due to the progressing Lyme to go to school since October 2013. While her insurance covers the medications, the clinic still charges a $2,225 monthly fee for overseeing treatment, as well as $400 every 6 weeks for an appointment.
Lindsay needs a total of $19,800 to pay for this treatment. Donating even $5 would be so incredibly helpful.
As mentioned before, Lindsay has had the vertebrae in her neck fused from her skull to CV2 and CV3-TV1. Recently, she felt a large POP in her neck accompanied by a large amount of pain. Since we were in DC, we went over to see her neurosurgeon to see what was going on with her neck.
The rod from her first fusion broke. This means that Lindsay has to have another spinal surgery (number 3) to fix it. This means more hospital, flight, and lodging bills. Again, anything you can give helps!